my painting "broken dreams:the pain of crohns and uc"

this is the imag ei created to help ppl who do not have crohns disease and uc understand the huge amount of pain we fight everyday ! understnad what this disease has taken from us and what it does to our bodies! what you are seeing is at th...

e top right is the nerves fireing pain under that isa actal reproduction of my personal cat scan results of an infected, diseased illium that has crohns disease and intestines below is an colonoscopy result the inside of an absessed bleeding ulcer ridden colon with infection and bad disease and alot of mucus and scar tissue, beside that is the brain centers that recieve pain illuminated and in her ear is a broken dreamcatcher to portray her lost dreams and the pain that has stolen them and she has to fight to reach them harder eveyr day, above is a woman recieveing remicaide treatment via blood infusion and portrays the pain and suffering of negitive dr visits and hopsital visits and being a proffesional paitent, thsi is life with crohns disease i fight every day to overcome thsi disease and the complete lack of understanding in our soceity! i hoe this helps the public udnerstand how much pain we have and how important it is to find us a cure fight hard crohnnies!

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what crohns disease taught me about life

what did crohns disease teach me about life?

being diagnosed with a terrible chronic illness is not all bad lol, it can teaCH you alot about other people, and how creul or kind they can be.  It can teach you what is really important in life and in society. it taught me that every second of my life is fought to exist, that everythign i do or say coudl be my last word or action, and that this human existance can be a creul unfair experiance but still be the most beauitfull  life you ever lead. It taught me to appreciate every little thing. It taught me who cares and who doesnt it taught me how to be strong and how to face death and to live every breathe as my last, it taught me how important it is to me to leave my mark on society on this plain of existance. Crohns taught me how important pure uncensored self expression is to the human conciousness. 

it taught me that no matter how bad things hurt no mater how cruel that society cna be you dont give up you fight and you fight hard. for me with crohns came the urge to end my life, thsi is a controversial subject to many with crohns the struggle seems like alot but crohns taught me that its worth it i am worth it i am worth the struggle to exisit, i am nolonger suicidal, not today maybe tomarrow,i will struggle again but i will try as hard as i can to have a tomarrow. i is hard to have the depression and axiety so often not discussed that comes with chronic illness, it is one fo the most difficult thigns to overcome wakign up in pain and feelign liek yoru life has been stolen by diseaSE BUT IT HASNT!  you can still lead yoru life, crohns is a horrible disease but you can still live while your here.if peopel around you dont understand what your going thru its ok ,educate them!if they still judge you and dont udnerstand after you educate them on crohns and hwo effect syou then fuck them!  people can live happy, long lives that greatly impact this existance with crohns.our lives might be a little harder but dont give up! that may be the most important lesson that crohns disease taught me and thats to never give up hope! crohns disease taught me no matter how hard it gets, how negitive i feel sometimes, that people here on this earth do love me and need me to keep fighting and they love and need you too, never give up!!! here is a link to a site list national crisis help hotlines http://suicidehotlines.com/national.html
i suggest to all that get diagnosed to join a facebook support group or soME other support group you are not alone! a good support group is ran by etan at http://www.facebook.com/#!/groups/285912844844091/286645411437501/?comment_id=286670938101615&notif_t=group_comment_reply

even if we are in pain there are still the good days make the good days count and try to get past the bad days beaucse like that song "the sun will come up tomarrow" if you are having trouble dealing with your disease and coping with the diagnosis please seek help do not be ashamed of how you feel despite the lack of discussion around the subject it is common to feel sucidal/seriously depressed with a chronic illness and you might need to seek a counselor or phycitrist in your area. please do so you do not have to fight alone! millions of people fight crohns disease everyday and we are fighting with you holding your hand in spirit! in my blogs i will be discussing and bringing up controversial subjects, tabboos or unspoken things that people with crohns fight with every day!

art and crohns disease

I went on disability for my Crohn's after I got fired from repeated jobs. One being an awesome job I loved so much as an art therapist for severe Alzheimer's patients. Loved it so much I'm still devastated that I had to be fired. Jobs I have had , I have found do not like to work around diseases, unfortunately, especially diseases that make you throw up in the trash can at work often, apparently you cant do that because people suck, and think your contagious (Crohn's is not contagious idiots)and complain to the union who fire you. They don't like you to spend weeks in the hospital either and they certainly get really mean when you spend a long time repeatedly in the bathroom. Some places I worked for that fired me over and over. Do you know how devastating that is? huh? yeah it is, I loved that job so much damn lady firing me!! How rude! Then my old Dr said he thought working was causing a lot of stress on my disease and I didn't have health insurance and he thought I should go on disability and wrote this note and recommended I get a lawyer, so here I am, a disabled artist fighting to live a life with this lame ass chronic illness, that keeps fucking shit up. So I have no career. I'm what i call a professional patient, it s lame. Just so you know.
people think its so great to be disabled because you don't have to work, well its not. It fucking sucks and i hate it. people forget hello!!!! If your disabled your sick and in pain all the time and you cant do nothing that's why you cant work hello! It sucks! Trust me people a lot of you hate your jobs and working but when its taken away from you by a shitty ass lame disease then you realize what you lost, your damn career. Now i get to go to Dr's all the time. Lame that sucks!! Its like a job being sick!! You have to be at this Dr at this time. The Dr says you can't do this can't do that. Dr says you need to take this pill and eat this food or clear liquid diet or no solid food or no coffee no liqueur no this no that its lame dude. Dr's suck and you have to wait forever in their office and their receptionist is rude or nosy or wants your insurance card even though shes seen it ten thousand times and i always cant find the damn thing. The Dr never make s you better either at least not in the thousand times I've been there, there is no cure and another reason why being disabled sucks cause it does everything about it does but most of all it sucks because your sick and none of your (except Christi n Jake) friends or family understand what your disease is. They don't understand why your sick and always have to say the worst possible thing even if they don't mean it. They always wanna give you their damn advice. They don't know what they are talking about so yeah I hate Crohn's disease. I hate having it and I wish they would cure it so I can have my damn life back. I'd say that about does it for the first post. What do ya think? Chrystal... also big thankx to etan for editing this as well you rock!