Wednesday, April 17, 2013

your hair and crohns !!! my voyage with a fro and info on med induced hair loss

hey guys srry i ve been neglecting you!! been super busy with my daughter and bellydance classes art and whatnot but i havent forgot you my darling bloggers! ;)
so today im tlakign about med induced hair loss and m,y long long journey to get long long hair! ;)

most of you know i have been growing out my at one time thick curly locks, or my fro as i call it, for around say 6 yrs! http://medical-dictionary.thefreedictionary.com/Crohn's+disease   remicaide can cause hair loss no matter what your doctor says i deifnatly think it can !! and that fighting me and the fact that crohns itself can cause inflammation in the hair folicle that cna make hair stopg rowing or slow its growth!


me really super sick and havin a dye job gone bad eekkk and the fro is flying ;) not happy chrystal

straghtened now if your growing out yoru hair and its like mine well finicky i suggest not straightening it for a while and if you do rarely go striaght i say use an instyler i luv em! they cause less damage to the hair shaft!

my bad hair extensions, ekk but im desperate how coem my hair wont grow?? extentiosna re a great option but go with natural hair not synthetic liek thsi one is and just opt for the straight extensiosn not the curly they get icky, faster,
black is not my color
and go for the separate peices not the half wig liek this! eek!

aww my fav color, i also suggest you stop dyign yoru hair asap!! im guilty as charged i luv to dye my hair im addicted to it!

bangs not so great for curly hair and a hassle and take foreve r to grow back out !!  remember that if yoru a curly girl!

still tryign to grow that fro!




now here it is my current fro in all its curly glory!

doing the special effects for an awesome music video dawn of the dub speakerboxer and my hair finnaly looks like its grown and how well im gona share that with you !!
tomarrow se eyou here same blog entry ill add more tomarrow guys! and a video of soem great diy hair masks





you are not alone med induced hair loss, thinning and lack of growth can seriously effect womens self essteem, and nobody speaks out about it! speak out raise up and try to be there for one another in the ibd communty. and outside it as well in our support systems and friends, reach out and help soemone it will make you feel better i promise;) i am no longe rhaving hair loss from my remicaide and i am startin to get lil "kitchen" i call it or new hair growth and after a yr on remicaide i have no more excissive hair loss thnak goodness and it is common for ppl on remicaide to have hair loss for a while but dont give up or get down about it there are things you can do, it gets better over time with the infusions!




Tuesday, January 22, 2013

event with the ccfa! call to artists!!

heloo every one i am planning an event with the ccfa! the crohns and colitis foundation of america!
i am also accepting any donations of any items in good shape to put in baskets to auction off thankx to everyone!
'Fighters' Art Exhibit Opening Reception
Friday, March 15h
Local artist Chrystal Robinson is hosting “Fighters”, an art exhibit about chronic illness
at Jupiter Studios in Alliance, Ohio (http://www.jupiterstudios.org)

Proceeds benefit CCFA Northeast Ohio. Admission is $5, available for purchase at the door.Live music by Michelle Ferguson plus the Jovian Sound Escape, snacks, speakers, & art auction.

CALL TO ARTISTS:

Artists of all ages and skill levels encouraged to submit work. Entries of original artwork welcome: all media including short stories and poems, paintings, and drawings, etc.
Artwork on all subjects accepted, those related to journeys with chronic illness prioritized. You need not be a professional
artist or writer to participate! Please submit two - three visual pieces, including one of your choosing for to the art auction.
For poems and short stories, please specify whether you plan to recite or if you would ike another artist to read on your behalf (or anonymously).
Deadline for Art submissions: March 1st.

Contact Chrystal with submissions and any questions: mystikchrystal@hotmail.com

Location

Jupiter Studios
346 E Main St
Alliance, OH, 44601

For more information

386 Park Avenue South, 17th Floor, New York, NY 10016    |    800-932-2423    |    info@ccfa.org
© 2013 Crohn's & Colitis Foundation of America
update!!!!

w eraised over three hundred dollars thankx to eveyrone, jupiterstudios the ccfa, heather hendrix at art in motion dance studios, ian and lindsey at hungry howies, dorsey ney at healthy heart thankx for yoru donations!support local businesses! thanks to all the speakers and ppl who came ect. ect. thankx for all yrou help! xo chrystal

unpredictable crohns and the effects of stress

hey eveyrone so sorry i havent written for a while ive been super sick and in alot of pain, this is no remmission, thats for sure! so crohns is super unpredictable looks like my remmission is over! i foudn a great new gi! working on getting better! ive been super stressed alot of stuff has gone wrong my dog is sick im sick my pipes froze the renters are moving out coreys hours got cut, and the list goe sonn and on and on ugh eveyrthings gone wrong latly so im trying to not fade into a deep depression here, but its definatly hard. im havign problems with my eyes and almost went blind now my vision is soooo blurry and i have to take steroid eye drops its freezeing cold here like 6 degrees eek i felt like i was having a panic attack today stress and crohsn disease is super super bad it makes eveyrthing wayyy worse wayyyyyyyyy worse but how does one stay stress free in todays world???

i havent got a clue but some things help a little

one is meditation chakra meditations or healing meditations wher eyou imagine the light the warm light the healing light flowing thru your body ect. 

two is adivan and a good angry vent to a friend lol

three is i dotn know so if you know please tell me cuz im extreemely stressed lol

you can never know when crohns will strike out i hope too se eeveyrone at my event we have changed the date to march 15th please email me with submission the submission deadline has been extended! mystikchrystal@hotmail.com